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They got early funding from the EDS Society, and then the surprisingly large community of EDS patients throughout the country drove the charge with philanthropic funding
Also searched were the Agency for Healthcare Research and Quality evidence reports, Clinical Evidence, the Cochrane database, Essential Evidence, the Institute for Clinical Systems Improvement, the National Guideline Clearinghouse database, and the U.S
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When a respected professional publicly experiments on themselves and invites others to share similar experiences, it may unintentionally encourage people who dont understand the risks and who may not be able to recognize or manage possible side-effects to try the same